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Cure POTS

Success Story

Cure POTS
When I was a sophomore in high school, I developed an illness called Postural Orthostatic Tachycardia Syndrome, or POTS, which is a disorder of the autonomic nervous system. Because people are unable to see a lot of what the nervous system controls inside the body, such as blood flow, digestion, breathing, heartbeat, and temperature regulation, it’s easy to make the assumption that the patients affected by this are completely healthy. Most of us are not wheelchair-bound and there is no outward physical indicator that shows how bad we really feel. On top of that, it is frequently misdiagnosed due to lack of awareness in the medical community. The average time it takes someone with POTS to be correctly diagnosed is 6 years, and even then, there’s still no cure. This is what everyone with POTS is working to change.

When you experience daily symptoms like we do, it’s hard to raise money or feel like we’re able to do anything to help. Bonfire made this much easier—there was no need to hold an event or set up a table to sell shirts. I was able to do everything from home while people from all over the world contributed.

I had never done anything like this before, so I was nervous about how the shirts would turn out. However, I knew I made the right choice with Bonfire when I received my shirt in the mail. It ended up being one of the nicest shirts that I own and I’ve had nothing but positive feedback from everyone who bought.

I would absolutely recommend Bonfire to anyone that needs to raise money for any cause. Because of Bonfire and all the people who contributed, I was able to sell 92 shirts and raise $814 for POTS research. It feels great to have been able to do something to make a difference.
Emily Deutz
Emily Deutz - Grafton, ND Fund Owner
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